My daughter was diagnosed with Harlequin syndrome as an infant. At first the frequency of her face getting flush would be rare, however now that she is a lot more active it seems to happen more, and she does not have to be doing anything as far as activity goes. Will this continue to the point that her face will never be plain? Is it possible that she feels it? She will lightly hit her face sometimes as is starts to get red. Is there a treatment? How rare is this? Is it genetic or is it a development of nerves as she grew in my womb?