Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
20th Congress of the International Organization for Mycoplasmology (IOM)
Sunday, June 1, 2014 -
Friday, June 6, 2014
Location: Federal Universidade Regional de Blumenau , Santa Catarina, Brazil
Description: The Congress provides a unique international forum to exchange scientific findings, discuss recent research progress, identify areas requiring greater emphasis, set research goals for the next biennium, recognize outstanding achievement in the field, and promote the study of mycoplasmas to young scientists. The Congress is also significant because it creates important opportunities for career development, networking and formal international recognition of early career achievements by the next generation of mycoplasmologists. Direct international exchange of new findings on the biology, epidemiology and control of these pathogens is contributing to improved diagnostics and intervention strategies necessary to reduce the substantial burden of infectious diseases involving these organisms, and helps to excite and create career opportunities for rising young biomedical scientists.
Contact: Barbara L. Mulach, Ph.D.,(301) 402-4199,firstname.lastname@example.org
Co-funding Institute(s): National Institute of Allergy and Infectious Diseases, Office of Rare Diseases Research
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One of my relatives was diagnosed with acute disseminated encephalomyelitis in 1997. Due to poor medical care, he has not received consistent treatment and his health has deteriorated over the years. He is now completely paralyzed. Is it too late for treatment to be effective? What is the prognosis for an individual who has not been treated promptly? See answer