Support and advocacy groups can help you connect with other patients and families, and they can provide valuable services. Many develop patient-centered information and are the driving force behind research for better treatments and possible cures. They can direct you to research, resources, and services. Many organizations also have experts who serve as medical advisors or provide lists of doctors/clinics. Visit the group’s website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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What determines if radiation therapy, chemotherapy, or hormone therapy is needed after the granulosa cell tumor has been removed? Also, if one ovary, the tubes, and womb have been removed as a result of granulosa cell disease, how is the other ovary checked for the disease? See answer
My daughter was diagnosed with a granulosa cell tumor of the ovary five years ago while having a routine operation on her womb. She has been monitored for the last 5 years by internal ultrasound. Recently, her ovary, fallopian tube, and a tumor on her bladder were removed during surgery. I am concerned that no one seems to know much about the best follow-up treatment for her. See answer