Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD. Suggest an organization to add.
Autoinflammation 2013: The Seventh International Congress of FMF and Autoinflammatory Diseases Wednesday, May 22, 2013 -
Sunday, May 26, 2013
Location: Lausanne, Switzerland
Description: The goals of this meeting include the exchange of clinical and scientific information regarding the autoinflammatory diseases. This is likely to result in improvements in the diagnosis and treatment of these diseases. Past Congresses have resulted in new scientific collaborations, development of registries for patients with specific autoinflammatory disorders, and the initiation of multicenter clinical trials.
Contact: Daniel Kastner, M.D., Ph.D., email@example.com
Co-funding Institute(s): National Human Genome Research Institute, Office of Rare Diseases Research
2013 Salivary Glands and Exocrine Biology Gordon Research Conference
Sunday, February 3, 2013 -
Friday, February 8, 2013
Location: Hotel Galvez, Galveston, TX
Description: The overall goal of this conference is to expedite progress in research in the area of salivary and exocrine tissue biology and to use research findings for the development of new therapies for salivary and other exocrine tissues dysfunctions. A secondary goal is to facilitate collaborations among salivary researchers and investigators in complementary basic, translational and clinical fields.
Contact: Penny Wung Burgoon(301) firstname.lastname@example.org
Co-funding Institute(s): National Institute of Dental and Craniofacial Research, Office of Rare Diseases Research
Workshop on Stem Cell Therapy for Rheumatic and Autoimmune Disease Friday, September 11, 1998
Location: NIH Campus, Bethesda, MD
Contact: Ms. Joanne Odenkirchen(301) 594-5055
Co-funding Institute(s): National Institute of Arthritis and Musculoskeletal and Skin Diseases