Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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Is there a genetic factor? What are the personality changes? I know of depression but what about other changes? See answer
I had a brain stem stroke one year ago and acquired Wallenberg syndrome. Is there any research programs which I could volunteer for? How can I find out about any research being done on Wallenberg syndrome? See answer