I had a brain stem stroke one year ago and acquired Wallenberg syndrome. Is there any research programs which I could volunteer for? How can I find out about any research being done on Wallenberg syndrome?
Wallenberg syndrome is a condition that affects the nervous system. Signs and symptoms may include swallowing difficulties, dizziness, hoarseness, nausea and vomiting, nystagmus, and problems with balance. Some people have uncontrollable hiccups, loss of pain and temperature sensation on one side of the face, and/or weakness or numbness on one side of the body. Wallenberg syndrome is often caused by a stroke in the brain stem. Treatment addresses each symptom and may include a feeding tube for swallowing problems, speech and/or swallowing therapy, and medication for pain. While some people's symptoms may improve within weeks or months, others may have long-term neurological problems.
Last updated: 5/22/2017
What are the signs and symptoms of Wallenberg syndrome?
Wallenberg syndrome may cause a variety of symptoms depending on the specific cause and the exact location of the damage to the brain. Symptoms may include:
pain and temperature sensory loss on one side of the face as well as on the opposite side of the body
rapid involuntary movements of the eyes (nystagmus)
problems with balance and gait (walking) coordination
Horner syndrome (decreased pupil size, a drooping eyelid and decreased sweating on the affected side of the face) with visual deficits
Treatment for Wallenberg syndrome focuses primarily on relieving symptoms and rehabilitation. A feeding tube may be needed for severe swallowing problems. Speech and/or swallowing therapy may be helpful. Medications may be used to control pain. Treatment may also depend on the underlying cause and/or how quickly it is identified.
Last updated: 5/23/2017
How can I learn about research involving Wallenberg syndrome?
To find out about ongoing research studies involving Wallenberg syndrome, visit our guide called "How to Get Involved in Research." The guide can help walk you through how to find current research studies.
Last updated: 9/2/2016
We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please