I had a brain stem stroke one year ago and acquired Wallenberg syndrome. Is there any research programs which I could volunteer for? How can I find out about any research being done on Wallenberg syndrome?
Wallenberg syndrome is a condition that affects the nervous system. Signs and symptoms may include swallowing difficulty; hoarseness; dizziness; nausea; vomiting; quick involuntary eye movements (nystagmus); balance and coordination problems; and Horner syndrome. It is often caused by a brain stem stroke. Treatment generally focuses on the specific signs and symptoms present and may include use of a feeding tube for swallowing difficulty, speech and/or swallowing therapy, and medication for pain.
Last updated: 3/16/2012
What are the signs and symptoms of Wallenberg syndrome?
Wallenberg syndrome may cause Horner syndrome and cerebellar ataxia. Horner syndrome can cause a lack of sensation on one side of the face and weakness of the palate, pharynx, and vocal cords which may result in difficulty swallowing and hoarseness. Cerebellar ataxia refers to uncoordinated muscle movement, which can cause walking problems (unsteady gait), sudden eye movements (nystagmus), and clumsy speech patterns (dysarthria). Other symptoms of Wallenberg syndrome may include dizziness, nausea, vomiting, loss of taste on one side of the tongue, uncontrollable hiccups, and vision disturbance. Wallenberg syndrome may also cause a loss of pain and temperature sensation in the side of the body that is opposite to where the stroke occurred.
Treatment for Wallenberg syndrome focuses on the specific signs and symptoms associated with the condition. A feeding tube may be necessary if swallowing is very difficult. Speech/swallowing therapy may be helpful. In some cases, medication may be used to reduce or eliminate pain. Some doctors report that the anti-epileptic drug gabapentin appears to be an effective medication for individuals with chronic pain associated with the condition.
Last updated: 3/19/2012
How can I learn about research involving Wallenberg syndrome?
To find out about ongoing research studies involving Wallenberg syndrome, visit our guide called "How to Get Involved in Research." The guide can help walk you through how to find current research studies.
Last updated: 9/2/2016
We hope this information is helpful. We strongly recommend you discuss this information with your doctor. If you still have questions, please