Nonprofit support and advocacy groups bring together patients, families, medical professionals, and researchers. These groups often raise awareness, provide support, and develop patient-centered information. Many are the driving force behind research for better treatments and possible cures. They can direct people to research, resources, and services. Many groups also have experts who serve as medical advisors. Visit their website or contact them to learn about the services they offer. Inclusion on this list is not an endorsement by GARD.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
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My 20-year-old daughter just had a breast lump removed and the pathology report indicated she has pseudoangiomatous stromal hyperplasia. Although we understand it is a benign condition, we want to learn more about it and are having difficulty finding information. What are the chances that another lump will develop? Is there a link between this condition and the use of birth control pills? If so, does this mean she should not use oral contraceptives in the future? See answer