No cure currently exists. Treatment depends on the symptoms and usually involves several specialists, such as interventional radiologist, neurosurgeons, vascular surgeons, cardiologists and dermatologists. Heart problems should be treated by a cardiologist. The arteriovenous malformations (AVMs) and/or arteriovenous fistulas are treated with surgery or with embolization. Leg differences are treated by an orthopedist. Capillary malformations can be treated by a dermatologist when the patients are concerned with the cosmetic appearance.
Supportive care may include compression garments (tight-fitting pieces of clothing on the affected limb to reduce pain and swelling); these may also protect the limb from bumps and scrapes, which can cause bleeding and are also recommended in cases of lymphedema. Heel inserts may be used if the legs are different lengths, which can aid in walking normally. Various pain medications and antibiotic medications may be prescribed as needed.
Last updated: 12/22/2016
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