Research helps us better understand diseases and can lead to advances in diagnosis and treatment. This section provides resources to help you learn about medical research and ways to get involved.
These resources provide more information about this condition or associated symptoms. The in-depth resources contain medical and scientific language that may be hard to understand. You may want to review these resources with a medical professional.
Ethical and Regulatory Aspects of the Procurement of Cell Products from Healthy Minors on Research Protocols: Protecting Minors in the Context of Potentially Life-Saving Clinical Research Friday, March 13, 2015
Location: NIH Natcher Conference Center, Bethesda, MD
The primary goal is to establish a set of guidelines to use when evaluating the role of a minor hematopoietic stem cell donor on a research protocol, as it relates to the Federal regulations governing pediatric research. Secondary goals include identifying areas of controversy in the context of minor donors and federal regulations and design actions plans to potentially implement change in the federal regulations.
Contact: Terry J. Fry, M.D.,(301) 402-0215,email@example.com
Co-funding Institute(s): National Cancer Institute, Office of Rare Diseases Research
Questions sent to GARD may be posted here if the information could be helpful to others. We remove all identifying information when posting a question to protect your privacy. If you do not want your question posted, please let us know.