ASK US A QUESTION
If you do not find the name of your condition or need more information, contact an information specialist at the Genetic and Rare Diseases Information Center (GARD). We cannot make a diagnosis or give medical advice, but we can provide information.
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PO Box 8126
Gaithersburg, MD 20898-8126
TOLL FREE:(888) 205-2311
What is the Genetic and Rare Diseases Information Center (GARD)?
The GARD Information Center was created in 2002 by the Office of Rare Diseases Research (ORDR) and the National Human Genome Research Institute (NHGRI), two agencies of the National Institutes of Health (NIH), to help people find useful information about genetic and rare diseases. The GARD Information Center provides timely access to experienced Information Specialists who provide current and accurate information about genetic and rare diseases in both English and Spanish.
Locate healthcare providers and researchers who have knowledge of your condition.
Navigate the process of trying to obtain a diagnosis.
Resources to help you find financial aid for medical costs.
Your Questions Answered
Answers to recently asked questions from the public on these rare and/or genetic diseases: