- Polymyoclonus infantile
- Infantile polymyoclonus
- Opsoclonus myoclonus syndrome
- Kinsbourne syndrome
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
Third Genome Dynamics in the Neurosciences Conference, Sunday, July 18, 2010 - Thursday, July 22, 2010
Location: The Hilton Metropole, Brighton, England
Description: The goal of this meeting was to integrate basic processes of DNA damage signaling and repair and clinical aspects of neurological and neurodegenerative disease. The program was designed to bring together leading scientists with primary interests in DNA damage signaling with those working in specific related neurodegenerative disease areas as a means for integrating these fields. It was anticipated that this would generate insights into how normal processes of genome maintenance in the brain contribute to the prevention of a wide range of diseases.
Opsoclonus Myoclonus Syndrome (OMS) Workshop, Saturday, April 10, 2010 - Saturday, April 10, 2010
Location: The Westin Harbour Castle, Toronto, Ontario, Canada
Description: The goals of the Opsoclonus Myoclonus Syndrome (OMS) Workshop were to discuss the various issues and special challenges that are associated with the diagnosis, prognosis, and treatment of OMS. The objective was to identify strategies to improve research and clinical collaborations and resource sharing in the United States and internationally. Workshop participants also examined the disease course of pediatric and adult onset OMS, discussed current therapeutic strategies, and looked at immune mechanisms of OMS. It was hoped that this workshop would result in the identification of basic and clinical research needs, the setting of research priorities, and facilitatation of the development of clinical protocols.