Sickle beta thalassemia
- Hemoglobin sickle-beta thalassemia
- Hb S beta-thalassemia
- Sickle cell - beta-thalassemia disease
- HbS - beta-thalassemia
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
James B. Herrick Symposium - Sickle Cell Disease Care and Research: Past, Present, and Future, Tuesday, November 16, 2010 - Wednesday, November 17, 2010
Location: NIH Campus, Bethesda, MD
Description: To mark the centennial of the publication of Herrick’s case report, the National Institutes of Health (NIH) announced the James B. Herrick Symposium - Sickle Cell Disease Care and Research: Past, Present, and Future held on November 16-17, 2010, on the NIH campus in Bethesda, Maryland. National and international experts in sickle cell care and research examined the history and societal impact of the disease and placed the disease within the context of existing and future basic, translational, and clinical research. Invited speakers addressed unresolved challenges and the ongoing burden of the disease. They also focused on genetic, cellular, and clinical perspectives across the lifespan as well as existing therapeutic options and possible future treatments.
Working Group on Sickle Cell Disease: Inflammation, Thrombrosis and Vascular Injury, Wednesday, October 28, 2009
Location: Bethesda, MD
Description: The goals of the working group were to identify research priorities for translational II research in sickle cell disease. The working group was designed to foster cross-disciplinary communication and to ensure that other disciplines and skill sets are included in sickle cell research. These priorities—the study designs, methods, disciplines, and skill sets—will be included in an RFA on this topic.
Clinical Research Priorities for Thalassemia, Wednesday, May 20, 2009 - Thursday, May 21, 2009
Location: Bethesda, MD
Description: The goal of this meeting was to allow interested individuals to express their opinions about the directions clinical research in thalassemia should take, given past experiences and limitations imposed by NIH budgets and regulatory requirements. These proceedings also served as the basis of a Request for Applications (RFA) for clinical trials in thalassemia.