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Diseases

Genetic and Rare Diseases Information Center (GARD)

Familial pulmonary arterial hypertension leucopenia and atrial septal defect


Other Names for this Disease
  • Familial pulmonary arterial hypertension, leucopenia and ASD
  • Familial PAH, leucopenia and ASD
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • Strategic Planning for Pulmonary Vascular Disease Research , Monday, March 08, 2010 - Tuesday, March 09, 2010
    Location: Bethesda, Maryland
    Description: Formulation of strategy for advancing clinical research in pulmonary arterial hypertension (PAH) was a high priority of this conference. Plans are to make participants' recommendations available via publication in a peer-reviewed journal. Initiatives on future research were considered.

  • Fifth International Conference on Pediatric Mechanical Circulatory Support Systems and Pediatric Cardiopulmonary Perfusion , Thursday, May 28, 2009 - Saturday, May 30, 2009
    Location: Hilton Anatole, Dallas, TX
    Description: The main objective of this conference was to focus on the current problems associated with pediatric cardiac patients during and after acute or chronic cardiac support. At this conference, we brought together many distinguished physicians and scientists to define precisely the current problems and to suggest solutions with novel approaches.

Other Names for this Disease
  • Familial pulmonary arterial hypertension, leucopenia and ASD
  • Familial PAH, leucopenia and ASD
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.