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Diseases

Genetic and Rare Diseases Information Center (GARD)

Amyotrophic lateral sclerosis type 8


Other Names for this Disease
  • Amyotrophic lateral sclerosis 8
  • ALS8
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


News


NCATS Co-Sponsored Conferences

  • American Society of Gene & Cell Therapy (ASGCT) 19th Annual Meeting, Wednesday, May 04, 2016 - Saturday, May 07, 2016
    Location: Washington, DC
    Description: Save the date and plan to head to Washington, DC on May 4-7, 2016, for the premiere gene and cell therapy conference in the world. Taking place at the Marriott Wardman Park Hotel, the ASGCT 19th Annual Meeting will feature ground breaking clinical trial results, cutting edge technology advancements, social networking events, and much more. Join over 1,900 of the worlds top gene and cell therapy professionals for four full days of educational offerings including plenary lectures given by Dr. David R. Liu and 2015 Japan Prize recipients, Dr. Alain Fischer, and Dr. Theodore Friedmann.

  • ALS Clinical Trials Guidelines, February 2016
    Location: Warrenton, VA
    Description: Specific Aims: 1. To finalize the formation of an Organizing Committee and Advisory Board of international ALS physician and physician-scientist volunteers to develop and organize an international meeting that will update the present ALS clinical trial guidelines; 2. To hold an international conference o review the issues and current status of clinical trials; 3. To discuss and develop guidelines for ALS RCTs; and 4.To publish the guidelines in major neurology journals and promote implementation of these guidelines into future ALS trials.

  • Drug Discovery in ALS: Opportunities and Challenges, Sunday, March 04, 2012 - Wednesday, March 07, 2012
    Location: Washington , D.C.
    Description: The goals of the workshop are: [1] To bring clinical and scientific leaders from academia and industry together to focus on drug discovery for ALS. [2] To enable discussion and new project ideas to evolve from the interaction of researchers with different expertise in ALS and related fields. [3] To bring young researchers at an early stage of their careers to a stimulating and educational forum enabling them to interact and learn from their peers. [4] To discuss three key areas that impact ALS Drug Discovery and related fields: A) Academic and Industry Partnerships, B) New Opportunities for Biomarker studies in ALS, and C) Clinical Trials Networks to enhance patient enrollment and standardization of trials between sites.

  • NIH ALS Conference: Clinical Research to Find the Pathogenesis and Cause of ALS, Wednesday, September 07, 2011 - Friday, September 09, 2011
    Location: Tarrytown House Estate and Conference Center, Tarrytown, NY
    Description: This conference is designed to stimulate the development of collaborative research projects between amyotrophic lateral sclerosis (ALS) physicians and basic scientists. It is expected that conference participants will develop a consensus regarding current research gaps and recommended next steps to enhance patient-oriented research in ALS. The previous “Tarrytown 1” conference, which was held in 2003, resulted in the formation of a new ALS research group that facilitated the biobanking of ALS biospecimens. It is expected that the 2011 conference will have similar tangible results.

  • Third Genome Dynamics in the Neurosciences Conference, Sunday, July 18, 2010 - Thursday, July 22, 2010
    Location: The Hilton Metropole, Brighton, England
    Description: The goal of this meeting was to integrate basic processes of DNA damage signaling and repair and clinical aspects of neurological and neurodegenerative disease. The program was designed to bring together leading scientists with primary interests in DNA damage signaling with those working in specific related neurodegenerative disease areas as a means for integrating these fields. It was anticipated that this would generate insights into how normal processes of genome maintenance in the brain contribute to the prevention of a wide range of diseases.

Other Names for this Disease
  • Amyotrophic lateral sclerosis 8
  • ALS8
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.