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Diseases

Genetic and Rare Diseases Information Center (GARD)

Juvenile Huntington disease


Other Names for this Disease
  • JHD
  • Huntington disease, juvenile onset
  • Juvenile onset HD
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Juvenile Huntington disease. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The Huntington Study Group (HSG) is a non-profit group of clinical investigators from medical centers in the United States, Canada, Europe, Australia, New Zealand and South America, experienced in the care of Huntington patients and dedicated to clinical research of Huntington disease (HD).  Click on the link to learn more about research trials that are currently underway.

Patient Registry

  • The National Research Roster for Huntington Disease Patients and Families (hdRoster) was established in 1979 at Indiana University. Funded by the National Institute of Neurological Disorders and Stroke, a branch of the National Institutes of Health, the Roster computerizes the names of families, including information about the history of HD in the family (family trees) and other related data. This information identifies HD patients and families who are interested in participating in research projects.
Other Names for this Disease
  • JHD
  • Huntington disease, juvenile onset
  • Juvenile onset HD
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.