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Diseases

Genetic and Rare Diseases Information Center (GARD)

SeSAME syndrome


Other Names for this Disease
  • Seizures, sensorineural deafness, ataxia, mental retardation and electrolyte imbalance
  • Epilepsy, ataxia, sensorineural deafness and tubulopathy
  • EAST syndrome
  • Seizures - sensorineural deafness - ataxia - intellectual disability - electrolyte imbalance
  • Seizures-sensorineural deafness-ataxia-intellectual disability-electrolyte imbalance syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Epilepsy Action
    New Anstey House Gate Way Drive
    Yeadon, LEEDS LS19 7XY
    UK
    Telephone: 0113 210 8800 (UK) or +44 (0)113 210 8800 (international)
    Fax: 0113 391 0300 (UK) or +44 (0)113 391 0300 (international)
    E-mail: epilepsy@epilepsy.org.uk
    Website: https://www.epilepsy.org.uk/

  • Epilepsy Foundation
    8301 Professional Place East
    Suite 200
    Landover, MD 20785-2238
    Toll-free: 800-EFA-1000 (800-332-1000)
    Telephone: 301-459-3700
    Fax: 301-577-4941
    E-mail: info@efa.org
    Website: http://www.epilepsyfoundation.org/

  • National Ataxia Foundation
    2600 Fernbrook Lane
    Suite 119
    Minneapolis, MN 55447-4752
    Telephone: 763-553-0020
    Fax: 763-553-0167
    E-mail: naf@ataxia.org
    Website: http://www.ataxia.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Seizures, sensorineural deafness, ataxia, mental retardation and electrolyte imbalance
  • Epilepsy, ataxia, sensorineural deafness and tubulopathy
  • EAST syndrome
  • Seizures - sensorineural deafness - ataxia - intellectual disability - electrolyte imbalance
  • Seizures-sensorineural deafness-ataxia-intellectual disability-electrolyte imbalance syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.