- Alpha Beta crystallinopathy (type)
- Desmin related myopathy (former name)
- Desmin storage myopathy (former name)
- Desminopathy (type)
- Filaminopathy (type)
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My mother has recently been diagnosed with this disease. Her first symptoms became apparent about 2.5 years ago when she developed weakness in one foot. She currently has little movement in her legs, and her hands, arms, speech and breathing are affected. What is the prognosis and life expectancy for this condition and what can we expect from here? Click here for answer