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Diseases

Genetic and Rare Diseases Information Center (GARD)

Paragangliomas 4


Other Names for this Disease
  • PGL4
  • Pheochromocytoma, extraadrenal and cervical paraganglioma
  • SDHB-Related Hereditary Paraganglioma-Pheochromocytoma Syndrome
  • Paragangliomas, hereditary extraadrenal
  • Pheochromocytoma, familial extraadrenal
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • The Tenth International Catecholamine Symposium (XICS), Sunday, September 09, 2012 - Thursday, September 13, 2012
    Location: Ailomar Conference Grounds, Pacific Grove, CA
    Description: The Tenth International Catecholamine Symposium (XICS) will emphasize integration of basic science with clinical pathophysiology, by a program centering on disease-oriented research about catecholamine systems. The goals of the XICS are to: disseminate the latest important basic scientific, disease-oriented, and patient-oriented medical advances about catecholamines; foster interactions among basic scientists, disease-oriented researchers, and clinical investigators, via common interests in catecholamine systems; emphasize integrative approaches for understanding the roles of catecholamines in cellular, organ, systemic, and organismic integrity; comprehensively update research on catecholamines in rare and common disorders of development in pediatrics, regulation in adults, and degeneration in the elderly; and foster synthesis of molecular genetics with integrative physiology and pathophysiology, based on evolving understanding of catecholamine systems.

  • International Adrenal Cortex Conference “Adrenal 2010”, Wednesday, June 16, 2010 - Friday, June 18, 2010
    Location: San Diego, California
    Description: This conference provided a forum for both new and established investigators to present their most recent work, highlighting new findings relevant to adrenal physiology, biochemistry and molecular biology, genetics, and medicine. It was anticipated that these discoveries would provide a framework for further understanding of the function of the adrenal gland and its contributions to health and disease.

Other Names for this Disease
  • PGL4
  • Pheochromocytoma, extraadrenal and cervical paraganglioma
  • SDHB-Related Hereditary Paraganglioma-Pheochromocytoma Syndrome
  • Paragangliomas, hereditary extraadrenal
  • Pheochromocytoma, familial extraadrenal
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.