Other Names for this Disease
- Pheochromocytoma, extraadrenal and cervical paraganglioma
- SDHB-Related Hereditary Paraganglioma-Pheochromocytoma Syndrome
- Paragangliomas, hereditary extraadrenal
- Pheochromocytoma, familial extraadrenal
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- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- GeneReviews provides current, expert-authored, peer-reviewed, full-text articles describing the application of genetic testing to the diagnosis, management, and genetic counseling of patients with specific inherited conditions.
- The Paraganglioma Program at the University of Pittsburgh Cancer Institute offers a complete and comprehensive diagnostic and treatment program for patients who have tumors known as paragangliomas of the head and neck. To learn more about the research going on through this program, click the above link.