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Diseases

Genetic and Rare Diseases Information Center (GARD)

DICER1-related pleuropulmonary blastoma cancer predisposition syndrome


Other Names for this Disease
  • DICER1-related pleuropulmonary blastoma
  • DICER1 syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied DICER1-related pleuropulmonary blastoma cancer predisposition syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. There is a study titled "DICER1 and the Pleuropulmonary Blastoma Family Cancer Syndrome" that may be of interest to you. Click on the study title to learn more.

Patient Registry

  • The International Pleuropulmonary Blastoma Registry is a collection of physicians, scientists, and data analysts from many institutions who have been working together for 20 years to evaluate cases of pleuropulmonary blastoma and research this condition. To learn more about the Registry click on the link above.

    The International Pleuropulmonary Blastoma Registry
    Pediatric Oncology
    Children's Hospitals and Clinics of Minnesota
    2545 Chicago Ave. S., Suite 412
    Minneapolis, MN 55404
    Phone: 612-813-7115
    Fax: 612-813-7108
    E-mail: gretchen.williams@childrensmn.org
Other Names for this Disease
  • DICER1-related pleuropulmonary blastoma
  • DICER1 syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.