DICER1-related pleuropulmonary blastoma cancer predisposition syndrome
Other Names for this Disease
- DICER1-related pleuropulmonary blastoma
- DICER1 syndrome
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On this page
- How to Get Involved in Research – A video developed by GARD Information Specialists that explains how you can find out about research for a rare disease.
- ClinicalTrials.gov lists trials that are studying or have studied DICER1-related pleuropulmonary blastoma cancer predisposition syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The Research Portfolio Online Reporting Tool (RePORT) provides access to reports, data, and analyses of research activities at the National Institutes of Health (NIH), including information on NIH expenditures and the results of NIH-supported research. There is a study titled "DICER1 and the Pleuropulmonary Blastoma Family Cancer Syndrome" that may be of interest to you. Click on the study title to learn more.
- The International Pleuropulmonary Blastoma Registry is a collection of physicians, scientists, and data analysts from many institutions who have been working together for 20 years to evaluate cases of pleuropulmonary blastoma and research this condition. To learn more about the Registry click on the link above.
The International Pleuropulmonary Blastoma Registry
Children's Hospitals and Clinics of Minnesota
2545 Chicago Ave. S., Suite 412
Minneapolis, MN 55404
- ResearchMatch is a free national research registry designed to bring together patients, healthy volunteers and researchers. Anyone from the United States can register with ResearchMatch, and a parent, legal guardian, or caretaker may register on behalf of a volunteer. Researchers from participating institutions use the ResearchMatch database to search for patients or healthy volunteers who meet the study criteria. Many studies are looking for healthy people of all ages, while some are looking for people with specific illnesses. ResearchMatch was developed by major academic institutions across the country and is funded by the National Center for Research Resources (NCRR), a center of the National Institutes of Health (NIH), the primary Federal agency for conducting and supporting medical research. Click on the link to learn more about ResearchMatch.
- NIH Clinical Trials and You is a website developed by the National Institutes of Health (NIH) to help people learn more about clinical trials, why they matter, and how to participate.