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Diseases

Genetic and Rare Diseases Information Center (GARD)

Epidermolysis bullosa simplex


Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Epidermolysis bullosa simplex. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.
Other Names for this Disease
  • Epidermolysis bullosa intraepidermic
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