Systemic capillary leak syndrome
Other Names for this Disease
- Clarkson disease
- Capillary leak syndrome
- Capillary leak syndrome with monoclonal gammopathy
- Periodic systemic capillary leak syndrome
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Your QuestionIs there a full and final cure for systemic capillary leak syndrome?
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Unfortunately, there is no cure for systemic capillary leak syndrome at this time. However, recent studies suggest that taking medication known as beta-adrenergic agonists (including terbutaline) or undergoing immunoglobulin intravenous (IV) therapy may reduce the frequency of attacks and may increase survival in individuals affected with this condition.
Last updated: 9/11/2014
- Gousseff M, Arnaud L, Lambert M, Hot A, Hamidou M, Duhaut P, Papo T, Soubrier M, Ruivard M, Malizia G, Tieulié N, Rivière S, Ninet J, Hatron PY, Amoura Z; Capillary Leak Syndrome Registry. The systemic capillary leak syndrome: a case series of 28 patients from a European registry. Annals of Internal Medicine. 2011; 154:464-471. http://www.ncbi.nlm.nih.gov/pubmed/21464348. Accessed 9/11/2014.