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Diseases

Genetic and Rare Diseases Information Center (GARD)

Inclusion body myopathy with early-onset Paget disease and frontotemporal dementia


Other Names for this Disease
  • IBMPFD
  • Inclusion body myopathy with Paget disease of bone and frontotemporal dementia
  • Limb-girdle muscular dystrophy with Paget disease of bone
  • Pagetoid amyotrophic lateral sclerosis
  • Pagetoid neuroskeletal syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • 9th International Conference on Frontotemporal Dementias, Wednesday, October 22, 2014 - Saturday, October 25, 2014
    Location: Vancouver, BC, Canada
    Description: <p>The 9th International Conference on Frontotemporal Dementias (ICFTD)<span>&nbsp; </span>is held every two years and is the only regularly scheduled international conference devoted to Frontotemporal dementia (FTD), making it an important opportunity for FTD clinicians, researchers, trainees and caregivers from around the world to share knowledge with the goal of improving care for patients with this devastating neurodegenerative disease. This is a particularly exciting time in FTD research as significant recent advances in our understanding of the molecular basis of FTD now provide us with the foundation for the rational development of targeted therapies. It is anticipated that the 2014 conference will attract more than 600 international delegates.</p>

Other Names for this Disease
  • IBMPFD
  • Inclusion body myopathy with Paget disease of bone and frontotemporal dementia
  • Limb-girdle muscular dystrophy with Paget disease of bone
  • Pagetoid amyotrophic lateral sclerosis
  • Pagetoid neuroskeletal syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.