Other Names for this Disease
- Neuroacanthocytosis syndrome
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Mental Health America
2000 N. Beauregard Street, 6th Floor
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- RareConnect has an online community for patients and families with this condition so they can connect with others and share their experiences living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders).