Pontine tegmental cap dysplasia
Other Names for this Disease
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition.
- The University of Washington's hindbrain malformation research program invites individuals with this condition to participate in their research program. Click on the link for more information on how to participate in their research study.