Adult neuronal ceroid lipofuscinosis
Other Names for this Disease
- Adult NCL
- CLN4 disease, adult autosomal dominant
- Hagberg-Santavuori disease
- Autosomal recessive neuronal ceroid lipofuscinosis 4A
- Neuronal ceroid lipofuscinosis
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Your QuestionIs Kuf's a terminal disease?
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Unfortunately, the long-term outlook (prognosis) for people with adult neuronal ceroid lipofuscinosis is generally poor. The symptoms tend to become worse over time, resulting in a shortened life expectancy. Most sources state that a person with adult neuronal ceroid lipofuscinosis usually lives about 10 years after the symptoms begin.
Last updated: 8/31/2015