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Diseases

Genetic and Rare Diseases Information Center (GARD)

Adult neuronal ceroid lipofuscinosis


Other Names for this Disease
  • Adult NCL
  • Kuf's disease
  • ANCL
  • Neuronal ceroid lipofuscinosis 4
  • CLN4 disease, adult autosomal dominant
Related Diseases
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Your Question

Is Kuf's a terminal disease?

Our Answer

We have identified the following information that we hope you find helpful. If you still have questions, please contact us.

What is the long-term outlook for people with adult neuronal ceroid lipofuscinosis?

Unfortunately, the long-term outlook (prognosis) for people with adult neuronal ceroid lipofuscinosis is generally poor. The symptoms tend to become worse over time, resulting in a shortened life expectancy. Most sources state that a person with adult neuronal ceroid lipofuscinosis usually lives about 10 years after the symptoms begin.[1][2]
Last updated: 8/31/2015

References
Other Names for this Disease
  • Adult NCL
  • Kuf's disease
  • ANCL
  • Neuronal ceroid lipofuscinosis 4
  • CLN4 disease, adult autosomal dominant
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.