Schinzel Giedion syndrome
- Schinzel Giedion midface-retraction syndrome
- Schinzel-Giedion syndrome
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My daughter is one month old and has been diagnosed with Schinzel-Giedion syndrome. Since this is rare and not many cases have been found we are limited to information. I would like to know where to find any and all information on this syndrome to better care for my daughter. Thank you. Click here for answer