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Diseases

Genetic and Rare Diseases Information Center (GARD)

Schinzel Giedion syndrome


Other Names for this Disease
  • Schinzel Giedion midface-retraction syndrome
  • SGS
  • Schinzel-Giedion syndrome
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Your Questions Answered


1 question(s) from the public on this disease have been answered. Submit a new question.
  • My daughter is one month old and has been diagnosed with Schinzel-Giedion syndrome. Since this is rare and not many cases have been found we are limited to information. I would like to know where to find any and all information on this syndrome to better care for my daughter. Thank you. Click here for answer

Other Names for this Disease
  • Schinzel Giedion midface-retraction syndrome
  • SGS
  • Schinzel-Giedion syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.