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Diseases

Genetic and Rare Diseases Information Center (GARD)

PDGFRB-associated chronic eosinophilic leukemia


Other Names for this Disease
  • Atypical Philadelphia-negative chronic myeloid leukemia
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News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • Personalized Medicine: Novel Biologic Therapies for Rare Eosinophilic Disorders, Tuesday, July 14, 2015
    Location: Chicago, IL
    Description: <p><span style="font-size: 11pt;">The short-term goals of the workshop are: 1) to bring together a multidisciplinary group of clinician-scientists with expertise in rare eosinophilic disorders to discuss issues related to improved patient care and clinical trial design, and 2) to continue to foster collaborative relationships between multidisciplinary clinical and basic science researchers interested in eosinophilic disorders. It is anticipated that the findings from this workshop will lead to a high impact publication addressing the role of personalized medicine in rare eosinophilic disorders and to improved design of planned multicenter clinical trials to assess the safety and efficacy of novel agents for the treatment of these disorders. </span></p>

  • Advancing Symptom Clusters Research on Rare Cancers, Wednesday, June 17, 2015
    Location: NIH Neuroscience Building, Bethesda, MD
    Description: <p>It is intended that the in-depth, interdisciplinary dialogue of this expert working group will formulate an emerging consensus on a working definition of symptom clusters and, specific gaps and opportunities that provide a foundation for a transformative strategic blueprint to guide future symptom cluster research in rare cancers. In addition, it is anticipated that workshop proceedings will inform a funding opportunity announcement.</p>

Other Names for this Disease
  • Atypical Philadelphia-negative chronic myeloid leukemia
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.