Autosomal dominant neuronal ceroid lipofuscinosis 4B
Other Names for this Disease
- Adult neuronal ceroid lipofuscinosis 4B
- Ceroid lipofuscinosis, neuronal, 4B, autosomal dominant
- Ceroid lipofuscinosis, neuronal, Parry type
- CLN4B disease
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Your QuestionIs Kuf's a terminal disease?
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Unfortunately, the long-term outlook (prognosis) for people with adult neuronal ceroid lipofuscinosis is generally poor. The symptoms tend to become worse over time, resulting in a shortened life expectancy. Most sources state that a person with adult neuronal ceroid lipofuscinosis usually lives about 10 years after the symptoms begin.
Last updated: 8/31/2015