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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
Fourth International Chordoma Research Workshop, Thursday, March 21, 2013 - Friday, March 22, 2013
Location: Liberty Hotel, Boston, MA
Description: A primary goal of the ICRWs is to facilitate new relationships and collaborations, thereby enabling research that otherwise would not be possible.
Third International Chordoma Research Workshop , Wednesday, March 16, 2011 - Saturday, March 19, 2011
Location: Bethesda North Marriott , Bethesda, MD
Description: This workshop was an opportunity to exchange ideas and develop collaborations with a multidisciplinary group of researchers and clinical specialists from across the globe. As in years past, this workshop stimulated cross-disciplinary thinking spanning a breadth of topics from developmental biology to drug development and advances in surgical approaches.
Overcoming Barriers to International Clinical Trials for Rare Cancers , Friday, December 10, 2010
Location: Bethesda, Maryland
Description: The goals of this conference were to introduce key institutional players to the topic of international clinical trials in rare cancers and to establish an ongoing dialogue. Participants left the meeting with a set of specific priorities that need to be enacted to promote these trials. The meeting promoted consensus on the way that resources are prioritized to address rare cancers. Participants were asked to convey the content of the meeting to their constituencies and to follow up with pilot concepts.