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Diseases

Genetic and Rare Diseases Information Center (GARD)

Cleft palate cardiac defect ectrodactyly


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News & Events


ORDR Co-Sponsored Conferences

  • 2016 Rare Disease Day at NIH, Monday, February 29, 2016
    Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
    Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.

  • Fifth International Conference on Pediatric Mechanical Circulatory Support Systems and Pediatric Cardiopulmonary Perfusion , Thursday, May 28, 2009 - Saturday, May 30, 2009
    Location: Hilton Anatole, Dallas, TX
    Description: The main objective of this conference was to focus on the current problems associated with pediatric cardiac patients during and after acute or chronic cardiac support. At this conference, we brought together many distinguished physicians and scientists to define precisely the current problems and to suggest solutions with novel approaches.

  • Workshop on Universal Reporting Parameters for the Speech of Individuals with Cleft Palate, Friday, April 30, 2004 - Sunday, May 02, 2004
    Location:
    Description: The goals of this conference were to adopt a universal reporting system including evaluation procedures, parameters of the system, guidelines in description of speech, speech sampling, use of scales and scoring, and data management and mapping and to identify a research agenda.

See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.