Your browser does not support javascript:   Search for gard hereSearch for news-and-events here.

Diseases

Genetic and Rare Diseases Information Center (GARD)

Short bowel syndrome


See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Living With

Medical Resources

  • A List of Centers with expertise in short bowel syndrome is provided in the September 2005 issue of Pediatric Gastroenterology. You can view a PDF of this list by visiting the University of Virginia Web site. Click on List of Centers above to view the PDF.

Financial Resources

  • National Organization for Rare Disorders (NORD) has Disease-Specific Assistance Programs designed to help patients with out-of-pocket costs such as monthly insurance premiums or deductibles. In addition, some programs may provide financial assistance for additional expenses related to a patient's diagnosis such as travel to see a specialist.
  • Patient Access Network Foundation (PAN Foundation) has Assistance Programs for those with health insurance who reside in the United States. The disease fund status can change over time, so you may need to check back if funds are not currently available. 
  • The Assistance Fund provides various services, including education and financial aid, to help patients with a chronic or serious illness cover the cost of FDA-approved medications. Patients must be U.S citizens or permanent residents.
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.