Connective tissue dysplasia Spellacy type
- Spellacy Gibbs Watts syndrome
- Connective tissue dysplasia, Spellacy type
- Spellacy-Gibbs-Watts syndrome
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
Workshop on Heritable Disorders of Connective Tissue, Sunday, June 04, 1995 - Tuesday, June 06, 1995
Location: Bethesda, MD
Description: As a result of this workshop, the participants recognized the joint efforts of clinicians, scientists, and patients in maintaining tissue and patient registries.