Best vitelliform macular dystrophy
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- Best macular dystrophy
- Macular degeneration, polymorphic vitelline
- Vitelliform macular dystrophy type 2
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ORDR Co-Sponsored Conferences
2016 Rare Disease Day at NIH, Monday, February 29, 2016
Location: Building 10, Masur Auditorium, National Institutes of Health, Bethesda, MD
Description: The 2016 Rare Disease Day at NIH will take place on February 29. The event, sponsored by NCATS and the NIH Clinical Center, aims to raise awareness about rare diseases, the patients they affect and the research collaborations that are addressing rare disease challenges. The day will feature tours, posters and exhibits, and presentations.
The First International Symposium on Translational Clinical Research for Inherited and Orphan Retinal Diseases, Friday, November 05, 2004 - Sunday, November 07, 2004
Location: Wardman Park Marriott Hotel, Washington, DC
Description: This international symposium was sponsored by the National Eye Institute; the Office of Orphan Products Development of the Food and Drug Administration; the Office of Rare Diseases (ORD); and the National Neurovision Research Institute, Foundation Fighting Blindness. The goals were to promote drug and genetic translational clinical research for rare retinal disease therapies; review status, case studies, and challenges of inherited rare disease research; facilitate interaction across vision, neurology, gerontology, and audiology; define the strategies and dynamics for commercializing orphan treatments; and prioritize and develop strategies for intellectual property, operational, and financial avenues to bring new therapies to patients.