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Diseases

Genetic and Rare Diseases Information Center (GARD)

Desmoid tumor


Other Names for this Disease
  • Fibromatosis, familial infiltrative
  • FIF
  • Familial infiltrative fibromatosis
  • Desmoid disorder, hereditary
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

On this page

Patient Registry

  • The Children's Tumor Foundation, which advocates for research into neurofibromatosis (NF), launched an NF Registry in 2012. The purpose of this registry is to find people who may be eligible for clinical trials or other research studies being conducted in the field of neurofibromatosis and to determine the commonality of specific NF characteristics.
Other Names for this Disease
  • Fibromatosis, familial infiltrative
  • FIF
  • Familial infiltrative fibromatosis
  • Desmoid disorder, hereditary
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.