Other Names for this Disease
- Fibromatosis, familial infiltrative
- Familial infiltrative fibromatosis
- Desmoid disorder, hereditary
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On this page
- The Children's Tumor Foundation, which advocates for research into neurofibromatosis (NF), launched an NF Registry in 2012. The purpose of this registry is to find people who may be eligible for clinical trials or other research studies being conducted in the field of neurofibromatosis and to determine the commonality of specific NF characteristics.