Desmoid disease, hereditary
Other Names for this Disease
- Aggressive fibromatosis
- Desmoid tumor
- Desmoid type fibromatosis
- Familial infiltrative fibromatosis
- Fibromatosis, familial infiltrative
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These Web pages are updated as the Genetic and Rare Diseases Information Center receives questions and as new information becomes available. If you don’t see many information resources on this page, it may be because the Information Center hasn’t yet received a question about this condition.
- The Dana-Farber Cancer Institute Web site provides information on desmoid tumor. Click on the link above to view this information page.
- The American Academy of Orthopaedic Surgeons provide information on extra-abdominal desmoid tumors. Click on the link above to access this page.
- The Desmoid Tumor Research Foundation Web site offers information on desmoid tumors. Click on the link above to access this page.
- Online Mendelian Inheritance in Man (OMIM) is a catalog of human genes and genetic disorders. Each entry has a summary of related medical articles. It is meant for health care professionals and researchers. OMIM is maintained by Johns Hopkins University School of Medicine.
- Orphanet is a European reference portal for information on rare diseases and orphan drugs. Access to this database is free of charge.
- PubMed is a searchable database of medical literature and lists journal articles that discuss Desmoid disease, hereditary. Click on the link to view a sample search on this topic.