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Diseases

Genetic and Rare Diseases Information Center (GARD)

Dominant dystrophic epidermolysis bullosa


Other Names for this Disease
  • Dominant dystrophic epidermolysis bullosa, generalized
  • DDEB, generalized
  • DDEB-gen
  • Epidermolysis bullosa dystrophica, autosomal dominant
  • Dystrophic epidermolysis bullosa, autosomal dominant
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

On this page

Patient Registry

  • The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.
Other Names for this Disease
  • Dominant dystrophic epidermolysis bullosa, generalized
  • DDEB, generalized
  • DDEB-gen
  • Epidermolysis bullosa dystrophica, autosomal dominant
  • Dystrophic epidermolysis bullosa, autosomal dominant
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.