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Diseases

Genetic and Rare Diseases Information Center (GARD)

Dystrophic epidermolysis bullosa


Other Names for this Disease
  • DEB
  • Epidermolysis bullosa dystrophica
  • Dermolytic epidermolysis bullosa
  • Epidermolysis bullosa, dermolytic
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Dystrophic Epidermolysis Bullosa Research Association of America (DEBRA of America)
    75 Broad Street
    Suite 300
    New York, NY 10004
    Toll-free: 855-CURE-4-EB
    Telephone: 212-868-1573
    Fax: 212-868-9296
    E-mail: staff@debra.org
    Website: http://www.debra.org

  • Epidermolysis Bullosa Medical Research Foundation (EBMRF)
    2757 Anchor Ave
    Los Angeles, CA 90064
    Telephone: 310-205-5119
    E-mail: a.pett@bep-la.com
    Website: http://www.ebkids.org

Social Networking Websites

  • RareConnect is an online social network for patients and families to connect with one another and share their experience living with a rare disease. The project is a joint collaboration between EURORDIS (European Rare Disease Organisation) and NORD (National Organization for Rare Disorders). Click on the link above to view the community for Epidermolysis bullosa.
Other Names for this Disease
  • DEB
  • Epidermolysis bullosa dystrophica
  • Dermolytic epidermolysis bullosa
  • Epidermolysis bullosa, dermolytic
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.