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Diseases

Genetic and Rare Diseases Information Center (GARD)

Dystrophic epidermolysis bullosa


Other Names for this Disease
  • DEB
  • Epidermolysis bullosa dystrophica
  • Dermolytic epidermolysis bullosa
  • Epidermolysis bullosa, dermolytic
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Research

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Dystrophic epidermolysis bullosa. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.

Patient Registry

  • The EBCare Registry is a resource for individuals and families affected by all forms of epidermolysis bullosa (EB) and qualified researchers working on approved EB research projects. The Registry itself is a research project and the data collected through the Registry will help characterize the condition of people living with all types of EB.
Other Names for this Disease
  • DEB
  • Epidermolysis bullosa dystrophica
  • Dermolytic epidermolysis bullosa
  • Epidermolysis bullosa, dermolytic
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.