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Diseases

Genetic and Rare Diseases Information Center (GARD)

Leukoencephalopathy with vanishing white matter


Other Names for this Disease
  • CACH syndrome
  • CACH/VWM syndrome
  • Childhood ataxia with diffuse central nervous system hypomyelination
  • Cree leukoencehalopathy
  • Myelinosis centralis diffusa
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • euro-ATAXIA (European Federation of Hereditary Ataxias)
    c/o Mrs. Sue Millman, secretary-general
    Per address Ataxia UK
    Lincoln House
    Kennington Park
    1-3 Brixton Road
    London SW9 6DE,
    Telephone: +44 (0)207 582 1444
    E-mail: smillman@ataxia.org.uk
    Website: http://www.euro-ataxia.eu

  • National Ataxia Foundation
    2600 Fernbrook Lane
    Suite 119
    Minneapolis, MN 55447-4752
    Telephone: 763-553-0020
    Fax: 763-553-0167
    E-mail: naf@ataxia.org
    Website: http://www.ataxia.org

  • United Leukodystrophy Foundation (ULF)
    224 North Second Street
    Suite 2
    DeKalb, IL 60115
    Toll-free: 800-728-5483
    Telephone: 815-748-3211
    Fax: 815-748-0844
    E-mail: office@ulf.org
    Website: http://www.ulf.org/

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • CACH syndrome
  • CACH/VWM syndrome
  • Childhood ataxia with diffuse central nervous system hypomyelination
  • Cree leukoencehalopathy
  • Myelinosis centralis diffusa
Related Diseases
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.