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Diseases

Genetic and Rare Diseases Information Center (GARD)

Glycogen storage disease type 0, liver


Other Names for this Disease
  • Glycogen storage disease due to hepatic glycogen synthase deficiency
  • Glycogen storage disease due to liver glycogen synthase deficiency
  • Glycogen storage disease type 0a
  • Glycogenosis type 0a
  • GSD due to hepatic glycogen synthase deficiency
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • Association for Glycogen Storage Disease
    PO Box 896
    Durant, IA 52747
    Telephone: 563-785-6038
    E-mail: maryc@agsdus.org
    Website: http://www.agsdus.org

  • Association for Glycogen Storage Disease UK
    Old Hambledon Racecourse
    Sheardley Lane
    Droxford, Hampshire, SO32 3QY
    United Kingdom
    Telephone: 0300 123 2790 (Office hrs, Mon-Thurs) or 0300 123 2799 (Out of hours)
    Website: http://www.agsd.org.uk/

  • Children Living with Inherited Metabolic Diseases (CLIMB)
    Climb Building
    176 Nantwich Road
    Crewe CW2 6BG
    United Kingdom
    Telephone: 0800 652 3181 (toll free)
    E-mail: info.svcs@climb.org.uk
    Website: http://www.climb.org.uk

  • Children's Fund for Glycogen Storage Disease Research, Inc.
    917 Bethany Mountain Road
    Cheshire, CT 06410
    Telephone: 203-272-2873
    E-mail: info@curegsd.org
    Website: http://www.cureGSD.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Glycogen storage disease due to hepatic glycogen synthase deficiency
  • Glycogen storage disease due to liver glycogen synthase deficiency
  • Glycogen storage disease type 0a
  • Glycogenosis type 0a
  • GSD due to hepatic glycogen synthase deficiency
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.