Other Names for this Disease
- Hecht syndrome
- Dutch-Kentucky syndrome
- Distal arthrogryposis type 7
- Arthrogryposis distal type 7
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While the best treatment options for trismus-pseudocamptodactyly syndrome have not been well established cases of improvement of mouth mobility following surgery and physical therapy have been reported in the medical literature. We recommend that you speak with your healthcare provider to learn more about specific treatment options.
Last updated: 4/13/2011
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. There is a study titled Studies of Children with Metabolic or Other Genetic Disorders which may be of interest to you. To find this trial, click on the link above.
- Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition.