Other Names for this Disease
- Tay syndrome
- Trichothiodystrophy with congenital ichtyosis
- Ichtyosis, Brittle hair, Intellectual impairment, Decreased fertility, and Short stature
- Trichothiodystrophy type E
- Trichothiodystrophy with congenital ichthyosis
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Treatments for Tay syndrome are symptomatic. There is no cure for ichthyosis, only treatments to help manage symptoms. The main treatment for ichthyosis is to hydrate (moisturize) the skin, hold in the moisture, and keep scale thickness to a minimum.
Last updated: 7/30/2013
- Foundation for Ichthyosis & Related Skin Types. http://www.firstskinfoundation.org/content.cfm/category_id/0/page_id/830. Accessed 4/15/2008.
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- ClinicalTrials.gov lists trials that are studying or have studied IBIDS syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- The U.S. National Institutes of Health, through the National Library of Medicine, developed ClinicalTrials.gov to provide patients, family members, and members of the public with current information on clinical research studies. Currently, 1 clinical trial is identified as enrolling individuals with trichothiodystrophy and 12 studies are enrolling individuals with ichthyosis. To find these trials, click on the link below and use "trichothiodystrophy" or “ichthyosis” as your search term. There are no studies presently on Tay syndrome specifically. Use the study’s contact information to learn more. Check this site often for regular updates. The ClinicalTrials.gov home page is http://www.clinicaltrials.gov.
- Foundation for Ichthyosis and Related Skin Types has funded ichthyosis-related research through its Research Grant Program.