Ciliary dyskinesia with excessively long cilia
- Immotile cilia syndrome due to excessively long cilia
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NCATS Co-Sponsored Conferences
2011 Cilia, Mucus & Mucociliary Interactions Gordon Research Conference, Sunday, February 13, 2011 - Friday, February 18, 2011
Location: Ventura, CA
Description: By tradition, the work presented at a Gordon Research Conference (GRC) is expected to be at the frontiers of science and unpublished to ensure presentation of the most recent and novel data. This format allows presentation of the most recent “hottest” findings. No publication is permitted from these proceedings as per GRC guidelines.
Primary Ciliary Dyskinesia and Overlapping Syndromes, Thursday, September 30, 2010 - Friday, October 01, 2010
Location: Eric P. Newman Education Center, Washington University Medical Center, St. Louis, MO
Description: The four main objectives of this international conference were to (1) optimize diagnosis of primary ciliary dyskinesia (PCD) through standardization of diagnostic testing, (2) define PCD genes and gene mutations through global networking, (3) optimize clinical care of PCD patients and develop clinical research networks to test therapies through clinical trials, and (4) refine nomenclature for ciliopathies and define overlapping features. Another goal was to establish PCD centers of excellence that will participate in research as well as clinical care. Given the lack of evidence in best clinical care, establishing a clinical trial network is urgently needed. Good medical management in a specialized PCD diagnostic and treatment center will probably provide the PCD patient with the best chance for preservation of lung function over time.