Ciliary dyskinesia with excessively long cilia
- Immotile cilia syndrome due to excessively long cilia
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ORDR Co-Sponsored Conferences
2013 Cilia, Mucus and Mucociliary Interactions Gordon Research Conference, Sunday, April 07, 2013 - Friday, April 12, 2013
Location: Lucca, Italy
Description: The goals of this conference are to bring together multidisciplinary experts in ciliary motility, mucus, mucociliary interactions and other cilia/fluid systems to discuss the latest results in these fields and to investigate new ways of approaching these dynamic interactive systems to further understanding of their properties and impact in human health and disease.
2011 Cilia, Mucus & Mucociliary Interactions Gordon Research Conference, Sunday, February 13, 2011 - Friday, February 18, 2011
Location: Ventura, CA
Description: By tradition, the work presented at a Gordon Research Conference (GRC) is expected to be at the frontiers of science and unpublished to ensure presentation of the most recent and novel data. This format allows presentation of the most recent “hottest” findings. No publication is permitted from these proceedings as per GRC guidelines.
Primary Ciliary Dyskinesia and Overlapping Syndromes, Thursday, September 30, 2010 - Friday, October 01, 2010
Location: Eric P. Newman Education Center, Washington University Medical Center, St. Louis, MO
Description: The four main objectives of this international conference were to (1) optimize diagnosis of primary ciliary dyskinesia (PCD) through standardization of diagnostic testing, (2) define PCD genes and gene mutations through global networking, (3) optimize clinical care of PCD patients and develop clinical research networks to test therapies through clinical trials, and (4) refine nomenclature for ciliopathies and define overlapping features. Another goal was to establish PCD centers of excellence that will participate in research as well as clinical care. Given the lack of evidence in best clinical care, establishing a clinical trial network is urgently needed. Good medical management in a specialized PCD diagnostic and treatment center will probably provide the PCD patient with the best chance for preservation of lung function over time.