Other Names for this Disease
- Acral dysostosis with facial and genital abnormalities
- Costovertebral segmentation defect with mesomelia (formerly)
- Covesdem syndrome (formerly)
- Fetal face syndrome
- Mesomelic dwarfism-small genitalia syndrome
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Robinow Syndrome Foundation
P.O. Box 934
Anoka, MN 55303
Telephone: 763-291-7190 or 763-434-1152
- DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
- RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.
Restricted Growth Association
P.O. Box 4744
Dorset, Intl DT2 9FA
Telephone: 01308 898445
Fax: 01308 898445