Other Names for this Disease
- Angio-osteohypertrophy syndrome
- Angioosteohypertrophic syndrome
- Klippel Trenaunay syndrome
- Klippel-Trenaunay-Weber syndrome
- Klippel-Trénaunay-Weber syndrome
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There is no cure for KTS. Treatment is symptomatic and supportive. Conservative treatments seem most effective while limiting the chances for undesired side effects. This may include the use of elastic garments and pumps to relieve lymphedema and protect limbs from trauma or orthopedic devices for discrepancies in limb length. Laser therapy may be used to diminish or eliminate some skin lesions (port-wine stains). Surgery may be used for tissue debulking, vein repair, or to correct uneven growth in the limbs.
Last updated: 11/11/2014
- NINDS Klippel-Trenaunay Syndrome (KTS) Information Page. National Institute of Neurological Disorders and Stroke (NINDS). September 30, 2011; http://www.ninds.nih.gov/disorders/klippel_trenaunay/klippel_trenaunay.htm. Accessed 11/11/2014.
- Understanding Klippel-Trenaunay Syndrome. Klippel Trenaunay (KT) Support Group. http://k-t.org/?page_id=28. Accessed 11/11/2014.
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
- ClinicalTrials.gov lists trials that are studying or have studied Klippel-Trenaunay syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.