Senior Loken Syndrome
Other Names for this Disease
- Juvenile nephronophthisis with Leber amaurosis
- Loken-Senior syndrome
- Nephronophthisis with retinal dystrophy
- Renal dysplasia - retinal aplasia
- Renal dysplasia retinal aplasia
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- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- ClinicalTrials.gov lists trials that are studying or have studied Senior Loken Syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
- Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition.
- The University of Washington's hindbrain malformation research program invites individuals with this condition to participate in their research program. Click on the link for more information on how to participate in their research study.