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Diseases

Genetic and Rare Diseases Information Center (GARD)

Senior Loken Syndrome


Other Names for this Disease
  • Senior-Loken Syndrome
  • Renal dysplasia retinal aplasia
  • Renal-retinal syndrome
  • Juvenile nephronophthisis with Leber amaurosis
  • Loken-Senior syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Treatment

GARD Video Tutorial

  • Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.

    Finding Treatment Information

Clinical Trials & Research for this Disease

  • ClinicalTrials.gov lists trials that are studying or have studied Senior Loken Syndrome. Click on the link to go to ClinicalTrials.gov to read descriptions of these studies.
  • Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition. 
  • The University of Washington's hindbrain malformation research program invites individuals with this condition to participate in their research program. Click on the link for more information on how to participate in their research study.
Other Names for this Disease
  • Senior-Loken Syndrome
  • Renal dysplasia retinal aplasia
  • Renal-retinal syndrome
  • Juvenile nephronophthisis with Leber amaurosis
  • Loken-Senior syndrome
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.