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Diseases

Genetic and Rare Diseases Information Center (GARD)

Hennekam syndrome


Other Names for this Disease
  • Hennekam lymphangiectasia lymphedema syndrome
  • Intestinal lymphagiectasia lymphedema intellectual deficit syndrome
  • Lymphangiectasies and lymphedema Hennekam type
  • Lymphedema - lymphangiectasia - intellectual disability
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.

Organizations

Organizations Supporting this Disease

  • National Lymphedema Network (NLN)
    225 Bush Street, Suite 357
    Suite 235
    San Francisco, CA 94104
    Toll-free: 800-541-3259
    Telephone: 415-908-3681
    Fax: 415-908-3813
    E-mail: nln@lymphnet.org
    Website: http://www.lymphnet.org

Social Networking Websites

  • DNAandU.org is a Web site and blog that collects firsthand stories from people facing issues, making tough decisions, and using genomic (DNA) information in their own healthcare. Click on the link to learn from their experiences and/or submit your own story.
  • RareShare is an online social hub dedicated to patients, families and healthcare professionals affected by rare medical disorders.

Organizations Providing General Support

Other Names for this Disease
  • Hennekam lymphangiectasia lymphedema syndrome
  • Intestinal lymphagiectasia lymphedema intellectual deficit syndrome
  • Lymphangiectasies and lymphedema Hennekam type
  • Lymphedema - lymphangiectasia - intellectual disability
See Disclaimer regarding information on this site. Some links on this page may take you to organizations outside of the National Institutes of Health.