Amniotic band syndrome
Other Names for this Disease
- ADAM syndrome
- Amniotic bands
- Amniotic bands sequence
- Amniotic deformity-adhesion-mutilation syndrome
- Congenital constricting bands
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Mild cases may not require treatment, however all bands need monitoring as growth occurs to watch for progressive constriction and swelling. Other constrictions may require surgical management; surgical options will vary depending on the abnormality. People with amniotic band syndrome who have amputations may benefit from the use of prosthetics.
Last updated: 10/3/2013
- Do T. Streeter Dysplasia. Medscape Reference. February 7, 2012; http://emedicine.medscape.com/article/1260337-overview. Accessed 11/1/2013.
- Finding Treatment Information - A video developed by GARD Information Specialists that explains how you can find information about treatment for a rare disease.
- The Centers for Mendelian Genomics program is working to discover the causes of rare genetic disorders. For more information about applying to the research study, please visit their website.
- Orphanet lists European clinical trials, research studies, and patient registries enrolling people with this condition.